KC Support is
a comprehensive, interactive resource dedicated to helping parents,
children and adults face the unique challenges of Keratoconus. KC
Support's aim is to bring awareness to the difficulties parents
and their children face with Keratoconus, from being diagnosed to
finding the right doctor. We also want to bring awareness to the
general problems people with Keratoconus incur on a daily basis
regardless of age. KC Support is not a charity nor a for profit
site. KC Support is privately financed. It offers a free service
for anyone affected by Keratoconus.
KC Support was created by Kristy and Neil, who both jointly
maintain and run the website, as well as moderate the message board.
Kristy's daughter, Anna, was diagnosed with advanced Keratoconus
at the tender age of 5. This diagnosis will mark her life forever.
After learning as much as she could about Keratoconus and seeing
many doctors, Kristy finally got Anna to see a KC specialist that
turned their lives around and made her a passionate advocate for
those with Keratoconus. She has appeared on local TV news programs
and several articles have been published about their experiences.
Neil was diagnosed with Keratoconus 4 years ago. Since that time,
he has been an active member and campaigner for various Keratoconus
charities and self-help groups.
In the spring of 2004, the collective efforts of three
people with a shared vision came to life. Roman, Jason and Neil
collaborated to develop the “Global Keratoconus Support Group.”
However, due to work and family commitments, two of the founding
members have had to focus their energies on other aspects of their
lives. The site said its final goodbyes at the close of 2004.
new year comes new inspiration... and a new site. It was at this
stage that we were inspired to create the new and improved KC Support.
Much of the structure of the former website was used as a starting
point. However, our vision has broadened and evolved toward a focus
on helping the entire family. With the increase in the incidences
of Keratoconus in younger people, we felt inspired to focus much
of our efforts on children with Keratoconus and the special challenges
they and their families face now and in the future.